My name is Brie, I am the Mom of an amazing teenage daughter, Samantha who we all call my Starfish. For most of her 14 years I was spoiled with a generally healthy child but a year and a half ago that all changed when she was diagnosed with chronic recurrent multi-focal osteomyelitis (CRMO). 2 months ago following a night in our local Children’s Hospital we also found out that she has IgA Nephropathy. I started reflecting on my new normal and all the things you just do not think about when you are handed this pristine, innocent and wonderful little human to take care of. I wanted to reassure parents they are not alone and that hopefully through my stories you will get some ideas or even a giggle from the ups and downs that are the roller coaster of having a chronically ill child.
I am a wife, student, friend and Mother of 4 amazing children. Aaron is 23, CJ is almost 18, Samantha is almost 15 and my Angel Taylor would be 19 this year if he had lived. My 3 living children all have special health needs due to various issues, Aortic Stenosis, Premature Lung Disease, CRMO and IgA Nephropathy.
This is a contact page with some basic contact information and a contact form.